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Fragile X Syndrome

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Directory Home: Health: Conditions and Diseases: Genetic Disorders: Fragile X Syndrome  (12)

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Fragile X Syndrome - Related Categories

 

Category Health: Conditions and Diseases: Neurological Disorders: Chromosomal - 12 sites
Category Health: Mental Health: Disorders: Child and Adolescent: Mental Retardation: Causes - 0 sites

 

Fragile X Syndrome - Web Sites

 

Carolina Fragile X Project
A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
url: www.fpg.unc.edu/~fx/

Conquer Fragile X, Inc.
Creating a virtual research center in Israel to find a cure.
url: www.conquerfragilex.org

Fragile X Association of Australia
Information on this disease, medical aspects, education, references, contacts and what's new in Australia
url: www.fragilex.org.au/

Fragile X Association of Southern California
Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
url: www.fraxsocal.org

Fragile X Research Foundation of Canada
Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
url: www.fragile-x.ca/

Fragile X Syndrome - Diagnostic and Carrier Testing
A Policy Statement from the American College of Medical Genetics.
url: www.faseb.org/genetics/acmg/pol-16.htm

FRAXA Research Foundation Home Page
Nonprofit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
url: www.fraxa.org/

Living with Fragile X
One family's account of raising 3 children with Fragile X.
url: fragilex.ca

Maryland Fragile X Resource Group
A community of families in and around the WashingtonBaltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
url: www.mdfragilex.org/

The National Fragile X Foundation
Features information about the disease, its treatment, and inheritance.
url: www.fragilex.org/

Online Support Group
Support group for Family's who are dealing with Fragile X Syndrome.
url: groups.yahoo.com/group/fragilex/

Pediatric Oncal
Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
url: www.pediatriconcall.com/fordoctor/diseasesandcondi....

 

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